By Menzies A. W.

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My father wanted to live, but he was dying – he had intractable bleeding, he had untreatable infections and no bone marrow. I was angry at his doctor for burdening us with the illusion of a decision. 61 Now I think my pain and anger had nothing to do with the doctor at all, that such reactions were part of my grief. I think it was highly unlikely my father would have recovered, and if he had regained consciousness at all, he would have died soon after from his underlying diseases. Probably the doctor was just offering us time.

Then we stepped out while they switched off the machines and took out the tube. It doesn’t take long to look dead. The colour of it, the lack of animation, the cold. The terrible irreversibility. For years afterwards, I’d wake in the middle of the night gasping for breath, heart pounding, thinking, “What if we decided the wrong thing? ” The burden of that decision was immense. Then there were the years I felt it was the right thing to do, but that it was wrong for his doctor to ask us to make the call.

Relationships are forged, care is individualised, and the need for hospitalisation is reduced. Public system changes such as these require long-term vision and funding, and in the short term they may not be good for business. What is good for business is to have a population of over-consumers who suffer the health consequences of their over-consumption, which may in turn be addressed by further consumption (of health products), preferably bought in a free market. As we have learnt from watching the American health system turn into a dragon raking gold into its cave, a mostly unregulated fee-for-service private system, where a doctor derives direct financial benefit from doing things to you – and where social supports are sparse – leads to gross overservicing, massive expenditure and poorer health outcomes.

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